Tuesday, December 4, 2012

Brief update on the journey


October 27, 2011

I wanted to send a brief update on Kai as I know you have been faithfully praying.  First, words cannot express how much I appreciate and have needed your prayers the past few weeks.  I woke last wk Thurs morning, excited that my "countdown" for the 3 wks waiting period for test results was down to just 1 more week.  Little did I know that apparently, God is still wanting to teach me some patience.  I must really suck at the whole "Be still and know that I am God" because once again last week, I got told to wait.  The specialist called me last Thurs afternoon on Kai...as you can imagine, my heart began to pound when I saw her name on my caller ID.  But much to my frustration, she called to tell me that the lab processing the DNA testing needed to confirm/negate the diagnosis had just called her to say they had thrown out Kai's DNA as they didn't have enough to complete the test, and they were going to need her to re-draw more blood and send more than she had sent the first time so that they would have enough.  ARRRRRGHHHH.  No, they didn't bother starting to process with what they already had.  They pitched it and now have to start over.  So...last week I had to take Kai back to the Duke main hospital for a big blood draw.  They have to do it at the hospital because they need so many viles of blood...5-6 viles at a minimum, most likely more.  And then they will re-submit the dna for the testing, making my wait start over instead of being 2/3 of the way done.  Apparently God feels I still need to learn a lot of patience.  The dr told me today it will be another 3-8 wks before they have results after they draw the blood tomorrow.  Please just pray for my strength as I'm feeling so beat down and worn out.  This not knowing crap is killing me.  I HATE being a "debbie downer" but this is tearing me apart inside.  I wish so much I could take this pain for my boy.  I HATE having him poked and stabbed over and over, and he is so sweet and innocent and doesn't understand why.
I would just like some answers of WHY

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