Monday, August 8, 2016

Hallelujah and Hurt

August 7, 2016

It's been a long time since I last wrote.  I realize that, and to be honest, there's so many random reasons why I won't even begin to explain them all.  But I do feel like it's been a gradual stirring in my heart the past few months to put my words to paper again and share my heart.  As most of my blog reader friends know by now, I don't do much "sugar coating".  I've become pretty straight forward and to the point the past few years.  I spent so many years being told what I could and couldn't say and do, I've taken a complete opposite turn and have become open and honest about my journey... all of it, the hallelujahs AND the hurts.  I've realized so many people are aching inside, longing to be true to who they really are, yet live in fear of what others may say or think of them, and keep the walls high and the masks on.  I can't live like that anymore.  I spent well over half my life living like that, and it's a miserable place to be, living a lie, hiding behind a shell so nobody knows the real self deep inside.  My journey of joys and pain are something I'm deeply convicted God has allowed in my life to bring His name glory.  So although there's a part of me that wishes it never happened the way it's unfolded, there's another part of me that's so thankful God picked stubborn and strong-willed me to be a part of a story much bigger than myself. 

So in candor and raw openness, I'll share a tiny bit of the big things in life the past few months... some of it I can't share (I'm bound by court orders on discussing openly the legal tornado that filled a large part of the past year), but instead I'll start with my monkeys (aka my 4 precious kiddos!).  Kalia is turning 14 in just another week, and heads off to her first year of high school in just 3 weeks.  YIKES!  Yep... slightly terrifying, yet also amazing to see how God is changing my sweet yet strong willed child, and growing her into a beautiful woman of wisdom, independence, and strength.  Kai is now 12, and just started 7th grade.  He's still the little fighter he's always been, determined and full of courage, and incredibly brilliant.  His disease is definitely rapidly progressing lately, and he uses a power chair at school now to try to help conserve his limited energy and stabilize his slowly deteriorating body.  He's still as determined as ever so I am incredibly thankful for his spirit... even though he's got the typical pre-teen attitude mixed in now ;)  Peyton is 10 now, officially into the double digit pre-teen years, and full of determination and sass, and wise well beyond her years.  She's now in grade 5, and loving life at the top of her school.  She's probably struggled the most of all 4 kiddos the past 4 years especially, wrestling thru the pain of the truth she knows of the hellacious divorce of her parents, yet not understanding how to fully process it as just a little innocent child who's world as she knew it flipped upside down.  She loves fiercely and deeply, and has begun to heal from her wounds and is becoming a strong and independent little lady.  Thayne is 7 now, and continues to be my rough and tumble, free spirited monkey, yet total mama's boy at heart.  He's in grade 2, and in his world, school is a waste of time because he should just be able to play freely with his buddies!  :)  He loves to play hard and is a natural athlete, but when it comes to settling down for the day, he wants nothing more than to snuggle up under his mama's wings and know that he's safe and loved deeply. 
Each of my monkeys has their struggles, but each also has incredible strengths, and I'm so thankful God picked me out of all the women in the world to be their mama! 




So there's also been a whirlwind of change in life for me too!  It's been a wild few months to say the least, yet it's also been one of the most incredible months of "seeing" God answer prayers for me in ways I never imagined possible.  I'll start with school... as some of you may know by now, in January of 2016, I felt God tugging on my heart for me to pursue my childhood dream of becoming a nurse.  Between Kai's special needs, medical issues with my 2 girls, and also my own struggles with an autoimmune disease of my own, I realized my incredible passion for the medical field and felt it was time to look into following a dream that I've had since I was a little girl.  I took a huge leap of faith (or maybe fear!) and applied to the Duke Accelerated BS in Nursing program.  I had researched programs at all the schools around me, and felt that was the program that best fit my passions as well as my desire to not go back to school for 4 additional years (already did that... no desire to do it again!).  Being an accelerated program, the Duke ABSN program is crazy intense, completing a Bachelor of Science degree in nursing in 16 months, and also a phenomenal program (just recently ranked in the top 3 nursing schools in the nation!), and I fully admit I have fallen in love with the genuine care Duke has given to both Kai and I over the course of the past 8.5 years of treatment there.  So I took the leap... and applied... and prayed.  A lot.  I got a lot of judgement of "how in the world will you do that with primary physical custody of 4 kids (they go to their dad's every other weekend only) and having to work multiple jobs to make ends meet", but honestly in my heart, I had an incredible peace that IF this was really what God wanted, then I would get in and God would make a way for all the other details to smooth out.  And if this wasn't part of the plan, then that's ok too and I would figure out what's next.  But for the kids and I, nursing school will provide us with SO much more opportunities in the future, as well as stability of just 1 job that was solid pay to provide for our growing needs.  So once again God worked on teaching me patience... and after 6 months of waiting... I got an e-mail one Tuesday evening while I was at my kid's swim meet.  I got in!!!  TOTAL God thing, as they told us that they only accepted 6% of the applicants!!  But for whatever reason, God allowed them to pick little ol' ME!!!!  And God didn't stop there... I was awarded a $20k scholarship for my first year!  I think I'm still on cloud nine :)  So I've been taking pre-requisite courses again, just to refresh myself (Duke accepted all my prerequisites from school 18 years ago, but I was feeling a bit overwhelmed at the thought and figured I had best remind myself how to study again!  lol).  I took 3 classes during the summer intensives, and have 3 more to take this fall... then January 2017, my official Duke nursing courses begin, and by May 2018, I'll be a licensed RN!!!!  EEK!  I still have to pinch myself and re-read my acceptance letter every once in a while, and smile as I see God's hand in ALL of it!  So do I know exactly how I'm going to manage it all with 4 kids full time, and still needing to make some income, and study and take 22 credit hours plus clinicals each semester, and pay for the rest of my school bills and living expenses??... no.  But I'm confident God will help me figure all that out just as He's done this far... it's just a new form of an Ironman :) 



And in the Hallelujah of the shared victories, I have to share I've also met an incredible man who's become a very important part of both my life as well as my kids.  I don't share much about my "relationship" status, mainly because of the lies SO many (not all, I realize) couples hide behind as they post public BS about their relationships and how wonderful their other half is, when behind closed doors their relationship is barely surviving.  I lived behind that lie for way too many years, and it now makes me want to vomit.  I think the best relationships I see and know in other couples, is ones I don't see on social media constantly, yet I see in real life... a genuine and sacrificial love for each other.  But just to squelch any rumors and answer any questions... I will share a tiny snapshot of my Scott.  We met on Match.com... I was on there on a dare, and honestly not looking for anyone as I had become comfortable in my independence and was loving finding myself again after years of being broken down.  He was on there and not really looking either, but decided to send me a message anyways (and we both crack up at his message now too, as he was really just trying to "weed me out" when he sent it!  lol).  We met for a first date at Panera, and if it tells you anything about myself, I had been thru a ringer of a day, and nearly canceled, but instead decided to throw on a t-shirt, jeans and ball cap, and go meet this man for a blind date.  We spent 3 hours of incredible conversation over coffee and soup that night.  It was conversations about life, and how much God had changed each of us from the brokenness of our past to where we were in the present.  Those conversations have continued over the past 11 months, and I've had the privilege of pressing closer and closer into Jesus with a man who challenges me daily to live a life defined by my faith.  His passion for Jesus flows out of him, and he loves both my kids and I in ways we've never experienced.  Scott's been a tremendous blessing to me in more ways than words can ever describe, and been an incredible instrument in my kid's healing process as well.  He's had his own hell, and his story isn't mine to share, but I know God's grace is real when I have a man like Scott in my life after my own hell of hurt, yet somehow this man can grasp the pain and walk the agony with me, with honor and empathy in a way I never dreamed possible, all the while challenging me to forgive over and over as the pain bubbles over with repeated abuse and manipulation, and my anger and hurt frequently resurface as the reality of betrayal and abuse never really disappears.  I never in a million years would have dreamed that I'd pen these words about a man I met online, but I think God must giggle when He watches us worship together, after all the smart remarks I used to make about "never meeting anyone online ... never in a million years".  So we don't know what the future holds or what will become of "us", but for now we'll take it a day at a time, as we press into Jesus together to take the next step, whatever the next step is (I stole that quote from Pastor Jimmy ;) ).

 

Saturday, January 16, 2016

Medical Mysteries

January 15, 2015

Don't go into shock with 2 posts in a month ;)  I figured it was time I gave a full update on my monkeys and their crazy medical happenings the past few months... since that was long overdue and so many of my faithful family and friends have continued to cover the 5 of us in prayers.  It's been a wild and wearisome past few months to say the least.  I will backtrack a bit... and start with Peyton for a change.  A few months ago, Peyton started having consistent episodes of dizziness.  I honestly am not a worry wart, so I told her she was fine and just to sit down for a bit and drink water if she felt dizzy.  Well this mama probably should have worried a bit more... in November, Peyton went off to school one morning, complaining of feeling dizzy (and again I told her to chill and drink water)... only for me to get a call from the school a few hours later saying she "was sick" and I needed to come get her.  I arrived at the school to get called into the office where the school admin told me to come sit down.  She then explained... Peyton had been lining up after recess, and suddenly collapsed.  When the teacher had called her name, she hadn't responded.  She was only "out" for a few seconds, but when she "came to", she had started to vomit.  She was dizzy and confused and still vomiting when I arrived to get her just a few minutes after the school called.  They were concerned about a possible seizure.  For some reason, I stayed fairly calm.  I got her in the car and immediately called her neurologist.  See she had 2 similar episodes (minus the puking) in the prior year, so we had already seen a neurologist and had an EEG (brain scan) done to check for seizures then.  The neurologist was concerned and set an appointment to have another EEG done.  So thus began another series of tests for my little monkey.  The EEG came back with no visible abnormalities, so after spending an hour with her neurologist, he decided to refer her to a pediatric cardiologist.  We're getting to know ALL of the Duke specialty departments now :)  So I took Peyton to see the cardiologist.  He was AWESOME!  He ran more tests, and did an EKG (heart scan) right there in the office.  He diagnosed Peyton with Vaso Depressor Syncope... the exact same heart condition both my mom and I have, which causes your blood pressure and heart rate to suddenly bottom out and cause you to get crazy dizzy, and often even black out.  The blessing is that often if it's diagnosed in children this young, they will grow out of it by puberty when their hormones fully change, so I'm praying for that!  Also, just having answers and knowing what to expect daily definitely helps both her and I deal with it!  The down side is that in a child as young and small as she is, she can black out for up to 20 minutes at a time!!!  CRAZY.  Treatment wise, there's not much they can do for her.  There's a med they can put her on, but the doctor and I met again together with Peyton this week, and we decided to wait until late spring to see if she really needs to go on it or if we can try to keep it at a manageable level with over hydration.  See for this disease, hydration is KEY, so in the winter, with the cooler temps, it's a bit easier to stay hydrated, where this summer, it'll definitely be more challenging and she may experience black outs more frequently and for longer durations.  So for now... we'll wait... drink lots (water that is...at least for her... lol!)... and pray she grows out of it quickly!



So my little dude Kai... the journey continues.  He continues to be a fighter... a trooper... my little man who faces more challenges daily than anyone else I know.  He now has an electric wheelchair that he can use at his own discretion when he feels so wobbly and fatigued that simple walking is too much of a challenge. He still has 3 therapies per week, and we are blessed with some of THE most incredible therapists who are constantly researching his disease and trying to keep things fun and challenging for my preteen who thinks everything these days is just "stupid".  :)  I've been incredibly blessed to have a super nurse who has been helping me with his needs after school as she has time (she's in nursing school so her time is limited, but I will take her help any time possible!).  Kai is still trying to be very independent, but that's definitely becoming more and more of a daily challenge.  Prayers are appreciated as I struggle to know how to best support and help my little man as there's so many questions that just cannot be answered as his disease is just too rare and unknown.  He's an inspiration in his fight!  Trust me, he's no angel... he's full blown preteen with the attitude and all... but it's his stubborn fight that's gotten him this far so for that I'm thankful.  Prayers are appreciated for sure ... this journey is an incredibly emotional one for both Kai, his siblings, and myself.  Kai knows fully that his body doesn't do what his brain tells it to do.  That makes it incredibly tough.  There's been a lot of tears shed by all.  Kalia, Peyton and Thayne are incredibly perceptive, and they see their brother struggle, and it's not easy.  They've watched him use the wheelchair at home more and more often, and they know the day is fast approaching where he'll need it at school too.  I will keep some of his other struggles private as I would never want to embarrass my little man, but suffice to say they are not easy to deal with day in and day out.  It's an exhausting journey.  One that I know God chose me to walk thru and fight thru with my oldest son, and his siblings who have a whole different first hand view of life with special needs, but one that I question God often about as well.  I have learned to be pretty raw and open, with the prayer that my journey can give another weary mama strength, just knowing someone else is out there who can relate and is in her corner.  Or maybe another extra special child out there who needs to know they have a fellow fighter in their corner and climbing an uphill road too.  It's a fight... a daily and hourly fight.  But just like training for my Ironman... each hour makes you stronger.  It's exhausting, and most days not pretty, but it's worth it ... because at the end of the day, every evening, I kneel by my kiddos beds and pray with and for them, and I hear their hearts as they share on their day, and I know I wouldn't have it any other way.  I don't understand the "why" God chose me for this particular journey... but I do know that I have my 4 amazing monkeys to walk the road with, and I have a Heavenly Father who has given me strength for each hour of the journey, and I'm confident He will continue to do so.




As for Kalia and Thayne, praise God their health has been great, so that's a huge blessing!
Me... well we'll just suffice to say that autoimmune diseases (Systemic Lupus to be specific) don't like a lot of stress and a little bit of sleep, so it's been a bit of a struggle with pain management lately to say the least, but I'm still able to move and groove as needed with my monkeys and work and daily routine, so I can't complain.  :)
So in a nutshell... prayers appreciated especially for my little dude Kai, and for his siblings and I as we continue to process his struggles along side of him and adjust daily to the ever present needs of our crazy schedule called life!




Thursday, January 7, 2016

Mini reflections from a wandering mind

January 7, 2016
Wow... A new year.  I think I'm still a little shocked it's already another year to be honest.  SO much has happened in just a year's time.  Sometimes it seems like just yesterday I was sitting with 2 of my dear friends at Durham Performing Arts Center for their Christmas Eve service, barely able to breathe as I was sobbing gut wrenching sobs.  I had just been served divorce papers as I had walked out the door to meet my friends for church that evening (well 2014 actually... I keep forgetting it's not 2015 anymore!).  The following week I had found out he had filed the papers wrong, so he had to go correct his errors and re-file, only to have them served to me on Valentines Day 2015.  January of this past year we had a massive court hearing... only to have my patience worked on again as we didn't get a ruling on that hearing until the end of March!  February, I was finally officially divorced with correct papers in hand.  April was Kai's Make-A-Wish Gala... one of the most treasured memories of my year to date!  May and June were a whirlwind, trying to help the kids finish up their school years strong, and me adding yet another job to my resume... coaching and managing at TriLife (a local triathlon store near my house).  July started the kids to new schools with a bang... now 2 in middle school (grades 6 and 8), and 2 in elementary (grades 1 and 4).  August I got to take my monkeys on our all time favorite annual trip... Ohio to see all the cousins, then on to Canada to Muskoka cottage country for a week in paradise with my parents!  September was a tough month.  (yep... honesty at it's finest from me).  The x had announced a few weeks after our divorce was final that he was engaged to one of my former closest friends.  September was their wedding.  The brokenness of my sweet babies nearly crushed me.  But again, were it not for their torn and raw hearts, I wouldn't have had the incredible chance to treasure hours upon hours of each of the 4 of them in my arms, drying their tears (along with mine... we should have bought stock in Kleenex Plus Lotion I'm pretty sure!) and reading His promises over and over about our Heavenly Father who promises to bottle our tears and forever and always be Faithful.  If it weren't for those long and sleepless nights from March through into late October, I wouldn't have the incredible raw and honest relationship that I do now with my babies, so for that I'm eternally grateful!  To see my children learn to cling to Jesus and seek Truth in their pain has been a painful yet priceless journey.  You see, their Jesus, my Jesus... He's real.  He's faithful.  He's our Comforter.  He's The best Father a broken child could ever dream of having.  And my monkeys have learned to see Him as our Provider too.  There were days we would pray together that God would somehow provide enough money to get food for that week... and He ALWAYS did!  HE never failed!  My kids saw their sweet innocent prayers answered as tangible "angels" as we call them, would out of the blue drop off a meal saying, put a card in the mail with $ to get us thru that month, or even arrive in person to hand me a grocery gift card or money they felt "God laid on their hearts to drop off", in the EXACT amount of a past due medical bill that they knew nothing about!  I'm telling you... God showed up!!!!  It was an incredible year of learning to trust all over again!!  See when you've walked thru years upon years of physical, verbal, and emotional abuse, you get really good at putting up walls.  Giant walls.  Made of cement, so that nobody can hurt you again.  If you never trust and never love, it's easier to "be strong" that way.  But you miss out.  Man do I wish I could tell you how much you miss out on!  And as those walls have been broken down (I would say brick by brick, but it's more like cinder block by cinder block because I'm pretty sure I just went ahead and built a fortress!), I've seen and felt love like I've never experienced in my adult life.  I'm learning (no I haven't quite mastered) to trust.  And it's freeing!  It's beyond words... like this giant bar full of rusty, old, heavy, 45# weights, has been lifted off my back... and my body can dance again (no... you don't want to really see me dance!  I have 2 left feet ... ;) but I love to dance anyways! ).



So today was a day of reflection for me.  If I'm honest, it's been the past few weeks really, but especially today.  See today would have been my 16th wedding anniversary.  Let me stop you before you start pitying me and saying you're sorry... it's ok.  I'm ok.  Really!  I'm actually AWESOME!  I won't pretend (for those who know me well, you know I'm honest, to a fault.  I say it like it is... without too much sugar coating!).  It was a bittersweet day.  With my close friends and family, it was sort of like that elephant in the room... 99% of them afraid to say a word about it so just said nothing instead.  IF it had been a marriage with God at the center, it would have been a great day to celebrate.  But that was far from the case.  So instead of looking back today with regret, I've spent my "looking back" moments today thinking of how thankful I am that even though there were years upon years of hell I walked thru, there were also moments I'm incredibly thankful for.  If it weren't for those years, I wouldn't have my 4 incredible kiddos (aka my monkeys) who are my joy and strength (and challenge!) daily.  If it wasn't for the pain I walked thru, I would have never discovered who God really made me to be, complete with my intense passions and strength I never knew I had that could only come from God.  If it weren't for those years, I would have never learned to say sorry, to own my faults and failures, and to forgive like I never thought was possible (I'm still daily learning the forgiveness part).  I would have never really known the genuine love (and tough love at times too!) of friends and family who loved me enough to speak truth, challenge me, dry my weary and teary eyes, and cover me in prayers when my feeble groans couldn't begin to put into words the deep brokenness of my soul. And if it weren't for those painful and sometimes terrifying and deeply lonely years, I would have never truly seen and felt the love of my Heavenly Groom like I've been able to experience.  Honestly, I wouldn't trade the nightmare for the peace I've found on the other side of the cocoon.  God's given me these incredible wings to fly this past year!
So all this rambling and reflections to say... my precious friends who are struggling, hang on.  Hang on tight to Jesus.  He's a big God and He can handle your anger, your hurt, your pain of betrayal, your brokenness, your shame.  Trust me... He can handle your words too.  There have been days upon days I've ran or cycled, sobbing, cussing, asking God "why".  But He can handle it.  I've been reading in Job recently, and have been challenged by his words... how can we possibly accept good from God but then think life's unfair if we face pain?  This jacked up world is full of sinners with a human nature.  God didn't promise no pain.  In fact He says we WILL have pain.  BUT in that pain... He's still there.  He's still God.  And He's got a plan far bigger and WAY more incredible than we could ever imagine.  Shoot, it's God after all!  If He can breathe a world full of color, creativity, life, and beauty, into existence with just a word, why do I ever doubt His ability to handle my daily drama?!
And give thanks... find things, even the tiniest thing like the smell of your toothpaste, to give thanks for.  :)
So I'm signing off from my ramblings... I can't wait for this year to unfold!  I pray God continues to grow and strengthen me (although I've told Him He's welcome to back off on the lessons in patience for a little bit if He'd so choose! ;) )... and I pray that with the brave wings He's given me, that I soar to new heights of knowing Him this year.  In the blessings and the pain... I pray both my kids and I see Jesus in our daily walks of life.  And I pray we have to courage to be a tangible Jesus to the ones in our paths.  Change is incredibly painful at times.... but SO beautiful too.


Monday, September 21, 2015

From Ashes to Beauty

September 20, 2015

It's been stirring in my heart for a long time now to share "my story", but I've battled the desire to share publicly my struggles and triumphs.  After all, it puts me in a vulnerable spot, and how people may see me after I put it out for all to see could be very different.  I guess I still have some strand of "people pleaser" in me... after all, don't we all?  But recently a well meaning friend made a comment to me saying "well, that's YOUR side of the story.  I'm sure the other side has a different one."  But although she didn't mean that to hurt me, it did.  See being a survivor, you quickly recognize that sometimes sharing your story makes you vulnerable to the looks and judgement of others.  But more importantly than that to me, it gives me a place to relate to others walking in the shoes I've walked.  Shoes that may appear strong on the outside, but on the inside, women (and sometimes men) like me are shattered and broken and desperately need someone who's walked thru the brokenness, and come thru the fire to become a voice willing to listen and fully understand their pain, believing them instead of doubting their story.  I've always said that if God can somehow use my pain for HIS glory, then it's worthwhile.  Little did I know when I first said that 2 years ago that God still had SO much work to do in me, but also how He would use my heartache and healing to speak to my kids in their loss of innocence and bleeding hearts as well.

So I want to backtrack to my childhood.  I was raised in an amazing home with 5 brothers and 1 sister, all super close in age, and with parents who loved us and loved Jesus in a genuine and tangible way more than anyone I have ever known.  My parents are a living breathing walking Jesus.  They are the definition of people who let their actions speak louder than their words.  They walk their faith daily.  They're prayer warriors.  They're the type of people who sacrifice and give to unending measures.  They love fearlessly.  I can't remember exactly how old I was, but I do know all my siblings and I were still spread between elementary, middle and high school, and my dad felt God called him to quit his full time job in computer management to step down to a part-time position so he could go into the inner city of Columbus and serve the homeless.  From that day forward, I remember my family always had a "less fortunate" family living in our home.  Some were there only for a short time, and others stayed months, even years.  We learned to love each family as my dad and mom tried to be a tangible Jesus and teach them life skills and help them find jobs so they could be on their own and be a "productive member of society".  There was everything from single moms with their kids, to addicts trying desperately to get clean, to Satanists who were trying to escape the cult of lies to spare the lives of their 2 beautiful children who were meant to be born to be sacrificed, to college students from a foreign country who had no family so were lonely and needed a family away from home to love on them.  My parents were that and more to each of them.  Each lonely and hurting in their own ways, and just needing a tangible touch of Jesus' love.  A God kiss as I call it.  My parents are the reason I learned to give and love.  They didn't just talk the talk.  They walked the walk.  They weren't afraid to love, and to show tough love too.



I learned to love without boundaries at a young age.  Love didn't see color or status in society.  Love just loved for who they were.

It was during those young years of life that my innocence was first stolen.  I think that's why it breaks my heart so desperately watching the innocence of my own 4 kids be taken from them thru the nightmare of the circumstances surrounding my divorce.  I used to love to play school with my friends.  We had a room in the basement that we set up with desks and a giant chalkboard and we'd play for hours.  I guess that's a perk to having so many siblings and neighbors... there was always kids to have to be your "students" in class and I could play teacher :)  I remember vividly playing with my best friend at the time.  We were setting up our class and the person staying at our house at the time was downstairs in his room.  I don't remember all the details of what happened next, but the next thing I remember was him touching my friend and I in ways I knew were totally wrong but I didn't know what to do.  Fear kept us quiet.  I don't know how long after that I got up the courage to tell my dad, but I remember the anger in my dad's face as he put that man in his car with all his belongings and drove him to the bus stop and told him to never come back.  I was damaged more on that day than I would ever realize until much later on in my adult life.  I buried that day deeply.  Honestly so deeply that I "forgot" about it until just a few years ago when going thru some intense counseling I'll share about a bit later.  But I realize now how it began to shape me.

I became an insecure teen.  I struggled to "fit in" through middle and high school.  I desperately wanted what I think everyone wants deep down... people to love them, think they're fantastic, and admire them.  I always tried to "be the best".  I played Ice Hockey on an all guys team in an all guys league.  I sucked, but I played :)  I played Lacrosse and loved every minute of it (that one I was actually decent at!  lol).  I partied with the best of them, and could drink most of my friends under the table, and then hid it all from my parents and would show up to church the next day and sing with the best of them there.  I moved on to college to do the same.  I was supposed to go to Ohio State and play lacrosse, but I had a big knee injury playing ice hockey and ended up changing plans at the last minute due to having to have surgery, and headed off to Liberty University instead.  For those who know Liberty back in the day, it was a school FULL of rules.  I guess I made it my mission to break every one of those rules as fast as possible. :/  I continued my party lifestyle.  I remember getting caught by one of the deans at the time, and he made me call my mom and tell her what I'd done (I had gotten caught drinking at a guys house off campus).  I remember sobbing, not because of what I'd done necessarily, but because I knew I had disappointed my parents.
My insecurities continued to grow... from a struggle with anorexia, to a serious relationship with my best friend at the time.  We dated 2 years and planned our wedding for after graduation.  God had different plans up His sleeves though... I've come to realize that happens often :)  His plans aren't my plans.  My senior year of university, I got sick.  Excruciating pain daily sick.  My hands and feet swelled to twice their normal size.  I lost total feeling in my left hand and right foot.  Doctors had no clue what was going wrong.  I refused to stop school, so I would scoot on my rear down the stairs of my apartment, hobble with the help of my roommates and/or boyfriend to my car, and then to class.  Doctors were at a loss and just kept increasing my doses of prednisone to try to kill the pain.  Before long, I was up to 80mg a day and still fighting incredible pain.  They ran test after test.  And after what felt like ages, they finally came up with a diagnosis... Systemic Lupus.  They said it would be bad and I needed to plan accordingly.  My boyfriend couldn't handle that and jumped ship.  Honestly, who could blame him.  But I was determined to fight the odds.  I up an moved to Colorado with two of my best friends right after graduation.  I was determined not to let the Lupus control me.  I lasted a few months before the pain became unbearable and I had to catch a flight home to head to the hospital for what ended up being a month of IV treatments.

What I left out above was that right after that breakup, I met the person who would soon become my husband.  It was a long distance relationship from the start.  There was no cell phones or e-mail back then, so we wrote letters and talked on the phone.  I lived out west, and he lived out east.  I moved back home to go to the hospital.  He stayed east and came to visit.  Before the end of that summer, we were engaged.  I've realized now that there's some of us who so desperately want a relationship that we just jump into the first available that seems to "feel" right.  We don't take the time to step back and evaluate and listen to the counsel of others.  We think we know best and plow forward.  Hindsight is always 20/20... but I fully own that I plowed ahead.  By January of the next year, less than a year after meeting, I was married.

Both of us were stubborn and strong willed.  Within the first 2 years of marriage, and an overwhelming amount of conflict, we moved 6 times within 2 states.  Tension continued to rise when we started having kids.  We sucked at communication.  I knew every button to push that would make him angry, and he knew mine.  "Discussions" became quickly heated, and voices raised.  I wasn't a very good wife in a lot of areas.  I was good at shutting down and putting up walls when arguments started.  That only added fuel to the fire, and I quickly was labeled with various unpleasant, nasty names.  What started as verbal abuse quickly escalated with kids on the scene.  It was then the physical started.  I was slammed against walls and thrown onto the sofa so that I could be pinned in a spot where I would "listen" to what he wanted to say and I wouldn't just walk away (as I was good at doing when my walls went up).  I've heard it asked a million times over "why didn't you just leave".  Great question.  And from the voice of a victim, I don't have an answer.  Maybe it was fear?  Maybe it was that I desperately wanted my marriage to work?  Maybe it was because I really did make those vows before God and wanted to honor them?  Maybe it was because I had some glimmer of hope every time an "incident" happened and then the apology and "it'll never happen again", that once and for all that really would be the end of it?  I don't know.  All I know is that I stayed silent.  For 10 years I never breathed a word to a soul.  I remember when the final straw happened late one night... after being wakened by shouting and my phone being crushed before my eyes because my phone records had been searched and I had talked with my best friend out west for 8 minutes and 22 seconds that I hadn't reported that day, I knew it was time.  After a heated argument, I dodged and locked myself in the commode of the master bathroom.  I knelt at the toilet and sobbed, begging God to wake me up and make this all just a bad dream.  When the pounding on the door finally quieted, I heard footsteps go back downstairs and I vividly remember climbing quietly back in bed, tears still streaming down my face.  But the battle wasn't over.  Suddenly I was pinned to my bed with an arm bar across my neck, and my quiet tears turned into desperate sobs of fear.  "God let me breathe.  Please.  My kids need me."  I fought and wrestled, begged and cried.  Finally, after what seemed like an eternity but in reality was probably only a few minutes, he stormed out of the house.  I remember finding an old cell phone (we didn't have a home phone so all I had was internet and some old phone I found) and calling a friend at the time who lived nearby.  I sobbed and begged for help.  They found him out driving around, and came over to mediate.  I was told I was disrespecting my marriage by talking to my friend, and although his actions were wrong, if I hadn't talked to my friend (who was a male, yes, but my best friend since middle school!), then this wouldn't have happened.  I can honestly say that night, I threw in the towel.  I don't give up.  Ever.  But that night, I was done.  My walls went up full force.  I was determined that I would just walk on eggshells to get by until my kids graduated from high school and I could leave.  I didn't want my kids to face divorce.  That's not what I wanted them to see.  I was determined to pretend... fake it until I made it to their graduation.  I started counseling.  I'd never opened up to anyone about my struggles before.  I grew up relating to men better than women, probably because I had 5 brothers, so I just seemed to relate better.  But I wasn't "allowed" to have friendships with men anymore, so I had female "acquaintances".  Nobody I could fully trust though.  Except my counselor.  Over the course of the next 2 years, I gradually opened up to her.  She was my safe place.  She invested hours upon hours into my life, helping me uncover the incredibly deep wounds of my past.  She encouraged me to find women I could relate to.  Women who would push me closer to Jesus.  We had changed churches, and the church we attended had a women's Bible study so I thought I'd try that.  It was incredibly out of my comfort zone.  The women cried a lot.  I didn't cry about anything.  They poured out their hearts.  I didn't trust anyone enough to even scratch the surface of that.  At first.  Over the course of the next year though, God worked in my heart.  I began to soften.  I began to trust tiny pieces of myself and my story with these girls.  Some of them even became my good friends who I ended up taking little "get away" trips with and girls nights out with.  My schedule began to change as his job changed... again.  He was now on to job #5.  We had now gone thru another half a dozen moves, and multiple other job changes, and my schedule became increasingly difficult to escape during the day to get to Bible study.  Tension continued to be like a pressure cooker at home... I would walk on egg shells for a long time, and then I'd slip and say something that would make the pot explode.  One day, when that pot exploded, but instead of me being the brunt of the anger this time, it was one of my kids.  It was a nightmare unfolding in front of my eyes that still haunts me to this day.  The terror in their eyes and the trembling sobs of my babies are burned into my mind forever.  I can't begin to describe how many times I've begged God to remove that awful night from my kid's memories.  I still pray He does.  I won't go into detail because I honestly can't bring myself to put it onto paper yet, but it was the breaking point where I knew that the marriage was over.  There was no way I would make it until the kids finished high school.  I was done.  And for the emotional health and safety of both myself and my kids, we needed out.

And so it was over.  I asked him to leave.  My dad came down and helped me.  Now when I say that, please know that my dad did not in any way support divorce.  He just wanted us to separate to both work on our own messes.  We were both a train wreck and needed serious help.  In all honesty, I don't know that I even realized just how much of a toll it had all taken on me until now.  We had been married 14 years.  I had only begun to scratch the surface of my pain with my counselor that I'd been seeing for nearly 2 years at that point.  I needed help.  So did he.  So did our kids.  I had the separation agreement drawn up, mainly because I was terrified about what could happen.  I spent the next few months making myself as busy as possible to kill the pain.  The more busy I was the less time I would have to think about the pain.  And on the nights I was alone while my kids were with him, I drank so I could fall asleep and not just toss and turn as my mind raced.  Not healthy I know.  But it's honest.  I met with my counselor weekly.  I had begun to have horrific flashbacks at night, and was fighting unrealistic fears.  PTSD was real in a whole new way.  I found myself alone in so many ways I couldn't even begin to wrap my head around.  I poured my time into my job and my kids when I had them.  Those girls I had started to trust and hang with... they turned their backs and walked away.  I received letters of judgment and hate from ones who used to say "I love you" and "I'm so thankful you're family".  I guess in hindsight I was too much drama and hurt, and after all, who really wants to hang with "Debbie downer" all the time.  I was alone.  Me.  God.  My kids.  And a whole lot of people that I could put on a brave face and smile for, but would go home and lie down and cry because none of them really knew what was behind that smile.  I decided to join Divorce Care.  It was one of the best decisions I ever made during those months of pain.  Little did I know God had a precious friend in that group that would soon become on of my closest and dearest friends.  And two other girls who had been "acquaintances" up until then, suddenly began to invest in my life and share their personal stories with me.  Both had walked thru painful divorces.  One, multiple divorces.  The other, a marriage and divorce from a narcissistic abuser where our stories are eerily similar to the hell I was walking.  All three women, God gave me to push me towards Jesus.  They wrapped their arms around my broken and messy self, and gave me courage to hold on.

I found out only about 3 months into our separation that my ex was seeing one of those Bible study friends.  Talk about a painful stab.  But it also explained why the others had walked away during my time of crisis.  I'm not going to dwell on that because it is what it is.  I have worked thru a lot of pain and hurt from that betrayal and from the betrayal of others thru it all.  I honestly pray she's able to be something to him that I could never be, because God forbid my poor children (and hers too) have to walk thru yet another nasty divorce.  I've told my kids over and over, forgiveness lets you out of your own prison.  I've walked it.  I know it's true first hand.  It's a daily choice, sometimes hourly.

So I come to today.  Less than a week away from my ex getting married to that girl.  My emotions have gone from extreme highs to lowest of valleys.  But I sit and look back and honestly am completely overwhelmed with thankfulness for how far God has brought me.  I've no where near arrived, but I can see a rainbow after the storm now.  It's still drizzling rain, and sometimes pouring, but the hurricane has settled a bit.  I'm surrounded by the most incredible prayer warrior and encouraging team of my family that anyone could ever ask for.  My parents have stepped up to love on me, encourage me, and surround my kids and I with DAILY strength and scriptures.  My siblings have loved hard.  They've all asked me tough questions and loved me with unconditional love.  They've gone to bat for me when I feel like I have nothing left in me to fight anymore.  My incredible support network of friends both far and near have loved on me like I've never felt love before.  I can honestly say I've never had such incredible love from female friends in my life as I've been flooded with the past 2 years especially.  And my male friends continue to keep me grounded... pushing myself with my competitive side and knowing this girl needs to get a solid hardcore sweat on before she can face a tough day :)  And my kids... whoever said kids are resilient was right.  BUT I would argue that behind that resilience, they are fragile and innocent little miracles who just need stability and to know that they're loved beyond a shadow of a doubt.  I'm SO thankful God picked me to be that tangible face of strength and love to them right now.  I've wiped more tears from their weary eyes, and pinched more snotty boogers from their drippy noses the past few months than I ever wanted to see fall from their precious faces in their lifetime.  I've pointed them to Jesus because I have no answers for their hurting hearts.  A lot of the questions they ask are the same ones I ask.  They've slept in my arms more nights than I can begin to count.  And I wouldn't trade a single night for the world.  Because it's in those dark nights when the lights are out that their tears fall and they ask the tough questions and bare their bleeding hearts.  They're perceptive.  Bright beyond their years.  Innocence has been robbed from them.  But I hold to Hope, believing that God will use them and their story in mighty ways one day, for HIS glory.

If it weren't for my years of brokenness, I wouldn't know my Jesus like I know Him today.  I wouldn't believe it were possible to have friends like I do.  I would have never been able to see God provide in literally miraculous ways for the kids and I for our basic needs like food and money for bills.  And my kids would never have been able to see a mom who went from a bitter and broken victim, to a woman who can stand tall and smile and know that with forgiveness and letting go, healing comes.


Sunday, August 30, 2015

Lessons Learned

August 30, 2015

Yes... shocker I know that I'm posting 2 whole blog entries in less than a month, but I feel like this one has been burning in my heart for a while now, and when my oldest daughter became a teenager just a few weeks ago, I think the thoughts started to overflow.  So this post is more of a brain dump that I hope and pray one day both of my girls read and take to heart.  It's wisdom from their mom, who's learned most of life's lessons the hard way because as those of you who know me already know... I tend to be stubborn and hard headed at times and most things for me have to be learned by doing and making mistakes and learning from them.

So I've been a single mom for nearly 3 years now.  As I write that, I look back and the time has gone by incredibly fast at times and also painfully slow at times.  I never wanted to be a single mom.  I never wanted to even have the "D" word spoken in my home.  But as I've said over and over... the past cannot be changed.  It's amazing how much people immediately come to conclusions and judgments about you when they hear you're divorced, not to mention if they hear you have 4 kids and one with some extra special needs.  Most guys run the other way.  I've decided that's because they aren't strong enough to face it without even taking the time to get to know me.  And that's ok.  See if they, or anyone for that matter, really take the time to sit back and see, every child has special needs.  Every child needs something special that only genuine love and affirmation will fill.  It's just that some have what I call "extra special needs" and need a few extra hours of your time for doctors and therapists.  I guess that leads me in to my lessons learned the hard way.  I hope and pray my girls don't have to learn them the way I've learned them, but instead will take to heart the words of their mama... and for the other single girls reading this, I pray a few nuggets stick with you too.

Discover who YOU really are.  What do you love?  What inspires you?  What makes you smile?  Never be ashamed of that uniqueness.  Don't conform.  That's the way God created you to be and it's what makes you special.  You don't need another person to affirm that or make you who you are.  Stand tall and confident that God created only one of you.  I spent years of my life trying to make myself into who I thought my friends wanted me to be, and who I thought a certain man wanted me to be.  In doing that, I lost myself.  I was an insecure woman wandering around trying to make everyone else happy, yet inside I was dying.  These past 3 years I've done a lot of re-discovering.  Everything from what I truly valued in friendships, to being satisfied with my looks, to my favorite types of music... the list goes on and on.  I've found a "me" that I had lost, and I'm still discovering parts of me that were buried, and each discovery makes me smile!  So be YOU.  Unashamedly YOU.

Listen to your friends and family.  So much of our life gets wrapped up in our feelings, and we have blinders on to reality of what road we're really walking in our life.  The ones who know and love you may call you on the carpet on some pretty tough stuff, but don't shut them out.  They see what we often don't see when we're walking in our own tunnel.  Many of them have already experienced the road we're walking and have learned lessons the hard way and are trying to prevent you from walking the painful road they've walked.  So listen to them.  Sit and think on their words before you react or defend yourself.  They're often right.  (ok if I'm honest, the majority of the time they're right!)  And speaking of friends... choose them wisely.  Don't just pick friends who agree with everything you say and do.  Pick friends who seek Jesus with all that they are.  Those are the ones who will walk the tough stuff with you and help steer you in the right direction.  They are the ones who aren't afraid to confront you on your choices and hold you accountable to making changes.  Your friends are your family that you get to choose.  So choose wisely and trust carefully.

Never pursue a man.  Let him pursue you.  I'm not dumb.  I know the day and age we live in and all this feminine rights stuff.  But if you have to chase a man, you'll spend the rest of your life chasing him trying to convince him you're worth it.  If he doesn't see your worth, he's not worth having you!  That's his loss!  I've learned this the very hard way, and my close friends will tell you I've learned my lesson.  Know that you are a beautiful and unique soul.  There's only one in the world of you.  And whoever (if there is one?!) that right man is... be patient.  God'll bring him to you when the both of you are ready.  Let him pursue you and ask you on dates.  Real dates where he picks you up and plans something special with you in mind.  If he's worth it, he'll want more than just to take you home to his bed.  He'll want to get to know you for who you are and he'll make the effort.  He won't be intimidated by your strengths.  Rather your strengths will inspire him!

Forgive.  Even when they don't apologize and don't deserve your forgiveness.  Forgive.  Learn to let it go and know that God'll handle them.  Your bitterness and holding a grudge doesn't do anything to hurt anyone except yourself.  Forgiving doesn't mean what they did was ok.  It just means you aren't letting their actions or words destroy you.  You're giving it to God and letting Him handle it.  After all, He does a much better job at handling it than we do anyways :)  Then pray for that person.  Trust me.  That's one of the hardest things you'll ever do.  But I promise it helps.  It makes you continue to let go and give it to God.

Last, pursue Jesus.  Never be ashamed of your faith.  Others may think you're crazy, but when life gets so hard you just don't know how you can take another moment, He'll be your strength.  He is faithful.  He never fails.  He provides.  He's got your back.  Hold on tight to His promises when the going gets tough.  He'll get you thru the storm so you can see the rainbow on the other side!



The Road of Life

At first, I saw God as my observer, my judge,
keeping track of the things I did wrong,
so as to know whether I merited heaven or hell when I die. He was out there sort of like a president.I recognized His picture when I saw it, but I really didn't know Him.

But later on when I met Christ, it seemed as though life was rather like a bike ride, but it was a tandem bike, and I noticed that Christ
was in the back helping me pedal.

I don't know just when it was that He suggested we change places,
but life has not been the same since.

When I had control, I knew the way. It was rather boring, but predictable . . .
It was the shortest distance between two points.

But when He took the lead, He knew delightful long cuts,up mountains,
and through rocky places at breakneck speeds, it was all I could do to hang on! Even though it looked like madness, He said, "Pedal!"

I worried and was anxious and asked, "Where are you taking me?"He laughed and didn't answer, and I started to learn to trust.

I forgot my boring life
and entered into the adventure. And when I'd say, "I'm scared,"He'd lean back and touch my hand.

He took me to people with gifts that I needed,
gifts of healing, acceptance and joy.
They gave me gifts to take on my journey, my Lord's and mine.

And we were off again.
He said, "Give the gifts away; they're extra baggage, too much weight."So I did,
to the people we met,
and I found that in giving I received, and still our burden was light.

I did not trust Him,
at first, in control of my life. I thought He'd wreck it; but He knows bike secrets, knows how to make it bend to take sharp corners, knows how to jump to clear high rocks, knows how to fly to shorten scary passages.

And I am learning to shut up and pedal in the strangest places, and I'm beginning to enjoy the view and the cool breeze on my face with my delightful constant companion, Jesus Christ.

And when I'm sure I just can't do anymore,
He just smiles and says . . . "Pedal."

~Tim Hansel
Holy Sweat


Friday, August 14, 2015

Heartache and Healing

August 14, 2015

As I sit thinking and writing, the view I gaze on is my taste of heaven on earth... sun twinkling off the still and glassy waters of the Muskoka lakes as a Loon calls in the backround.  A soft breeze blows thru the screen door and the smell of the previous night rain mixes with my morning coffee smell to wake me up to my final full day in my paradise.  I'm winding down a week of much needed healing and rest with my 4 precious kiddos and my incredible parents, who have given of themselves selflessly the past week to love on my kids and with amazing patience and love, continue to point them to Jesus thru every moment of our days here.  It's been the simple things... no flashy purchases or shopping adventures.  Just enjoying God's creation.  Walks along the hilly and winding dirt roads to gather wildflowers for our kitchen bouquet each morning, canoe and kayak trips along the shoreline to see the handiwork of The Creator in every rock and boulder and tree lining the lake, the blanket of millions upon millions of stars that seems so low you could reach out and touch them... the list goes on and on. I knew my body was worn out and needing rest before the week began, but I didn't realize just how desperately I needed it until my mind finally unwound enough to process.







Have you ever had someone give you something with good intent, but you just weren't ready to receive their words or gift at that moment?  The time just wasn't right?  You knew they were right but your heart and soul just weren't ready.   It seems like that's been my story a lot lately.  I've walked a pretty ugly past few years.  If I'm fully honest, there were plenty of times I thought it would never end.  People with good intentions would tell me to just pray... give it to God... forgive... let it go.  And all that is good and true, but sometimes I wanted to just scream in their face that they had no clue the agony I was wrestling with deep down inside, and their words only made it worse because in the depths of my being I knew what they were saying was right, but I just couldn't do it.  There was so much buried pain that I didn't even know how or where to begin.  It was like the onion... layer upon layer as I would process would reveal more buried pain and heartache.  I had been "strong" (or at least I thought I was strong... putting on a good strong front) for so many years, the onion was gigantic.  It seems to never end as the layers came off.  Nearly 2 full years ago, my mom mailed me a book.  For those who know me well, you probably just giggled knowing full well I HATE reading so someone giving me a book is quite humorous in itself.  It's called "The Heartache No One Sees" by Sheila Walsh.  I remember trying to start to read just a page a day, and I couldn't do it.  It sat on my bedside table for well over a year and a half.  So in packing for my trip (which I packed for in all of 20 minutes for myself and 4 kids!  LOL!  Yep... I'm not your typical girl by any stretch!), I threw it in my bag thinking maybe, just maybe, I would read more than a page.  Little did I know what God knew... THIS was the perfect time for the book for me.  For a much deeper page of healing and freedom.  A whole new meaning to "letting go".  (Ps... for those of my friends who have walked a tough road... this book in AMAZING and I highly recommend it!)



So as I write, this is a reminder to myself more than anything.  See I carried on as "strong" for years upon years.  I was ashamed of my hurt and pain.  I was too proud to let on that deep inside there was battles raging.  The were wars behind closed doors of my home.  There was heartache upon heartache that I thought I should be strong enough to "fix" or "get thru", but the reality was much different.  I needed help.  Much more than I even knew just a few years ago.  I'm so thankful and humbled by the incredible Godly counselor I have, who's walked thru the onion layers with me for nearly 5 years now.  And I'm learning sometimes you need more than even just a counselor, and that's ok.  The fears and anxiety I faced were real.  Caused by things out of my control.  But real all the same.  And in order to be a healthy mom to my 4 precious kids, I needed help.  The more layers I peeled off, the more the pain of reality set in.  I struggled to "stay strong".  But as sleep got less and heartache became more uncovered, I realize that my view of "don't medicate a problem" was living in a fairy tale world.  I realized depression and anxiety was real.  PTSD was real.  And sometimes it's more than we can handle on our own, even with God's help.  So I got brave and got help.  It's been just under a year ago now, and I've been too ashamed to let others know.  But this week as I read the words of the book that was that gift so many months ago, I realized it was ok.  My giving in to taking a medication to help me overcome my PTSD anxiety and struggles was not a sign of weakness, but rather a sign of strength.  Admitting when we need help, and getting the help we need, it not a failure.  It's owning that we can't do it on our own.



A few weeks ago, my sweet 9 year old asked me why God allows struggles to people who love Him. I told her that was a question I wrestled with as a grown woman too.  I had shared with her how God says that "...in this world we WILL have trouble..." and "When you pass thru the waters, I will be with you; and thru the rivers, they shall not overflow you.  When you walk thru the fire, you shall not be burned, nor shall the flame scorch you." (Isaiah 43:2)  I loved how Sheila Walsh put it in her book... "Hold on to that promise when your feet are wet and the smell of smoke is in your hair.  Hold on to Christ, for He is holding on to you."  I can honestly say I've felt Him holding on to me more in the past year than I've felt in all my life.  It blows me away to see His daily God kisses to remind me that He's holding on to me!

And thru that healing comes a letting go... giving the pain and hurt to God and not taking it back.  It's a daily thing, sometimes even hourly, because for people like me who like to have things make sense, sometimes surrendering that pain doesn't seem to make sense because I want to see justice.  But holding on to it I've realized only takes me to places I don't want to be.  It keeps me in my own prison.  Sheila says it this way... "God can take the most evil act perpetrated on you and use it to prosper you in body, mind, soul, and spirit."  A few years ago, I would have argued that there's no way that's true.  But this week, I've realized in a whole new way the truth of those words.  If it weren't for the heartache of my past, I would never know the arms of my Jesus like I know them today.  I'd never really know the depths of my need for HIS strength and daily provision like I do now.  My kids never saw a mom that needed Jesus in her daily walk before.  But I pray that now that see that and know how much God meets us right where we are, and we can still worship in the storm.  I pray that somehow thru this storm, they can see a mom that's changed and still changing.  A mom that's learning to forgive and let go even when it doesn't make sense.  Because forgiving doesn't mean what happened to you was okay.... it just means you're simply being obedient.  It's the butterfly... it brings you out of the dark cocoon and allows you to fly free.

"It's never too late to be who you might have been!"


Thursday, July 16, 2015

God Kisses (for a warrior son and worn out mama)

July 16, 2015

So yes, I do know it's been a long time since I last blogged.  Not because life slowed, but more that it's been INSANE busy and my mind hit what I guess you could call a "writers block".  I struggled to put into words the thoughts and emotions racing thru my head every minute of every day.  A lot has happened since April... I have primary physical custody of my 4 kiddos, I'm working 3 jobs, I now have 2 preteens (Kai turned 11!), and my kids have finished one school year and started up another!  Yep... gotta love year round schools with their 4 day break between grades!  Kalia is now at the top of her school... grade 8 (terrifying thought to think I have a high schooler next year!).  Kai moved from the top of his school, to the beginning of a new chapter... grade 6!  Yep... 2 middle schoolers in the same house, and I'll be lucky to finish this school year without a full head of platinum hair ;)  Peyton is now in grade 4, and Thayne moved right on up to 1st grade.  Talk about wild after-school adventures of homework!  And me... well yes, along with being a full-time mom of 4 incredible monkeys, I've also now started a new job coaching and working for a local triathlon store.  I LOVE it!  I'm still working my other 2 jobs as well, so life is definitely lacking many quiet moments, but I'm learning to find joy in the chaos.  And as those of you who follow me on Facebook may already know... I've applied to nursing school!!!  I can't wait!  This is a lifelong dream of mine that I've finally stepped up to begin to fulfill.  I'll be cutting back on work and doing a mix of classes online and at school, so it'll be a juggling act, but I'm excited to finally have a career path I can use to also help Kai as his challenges progress.
 

So speaking of Kai... As many of you know by now, his disease has continued to present increasing challenges for his ability to get thru each day without extreme fatigue.  Although there's still minimal research about his disease, there IS 2 doctors in the United States who research and have a fairly decent knowledge of his disease and what I can expect as I help him function as best as possible thru each day.  One of those specialists is out at UCLA in California, and I took him out there a few years ago shortly after he was first diagnosed.  The other of those doctors is at Johns Hopkins, and I took him there as well.  So this past weekend, I made the trek up to Baltimore, Maryland, to see Dr. Crawford again and try to gain a bit more wisdom and understanding of his ever progressing disease.  Dr. Crawford is one of the leading Ataxia specialists in the world!  After waiting 3 hours, we were finally greeted by a warm smile and sincere apology by Dr. Crawford himself.  In a nutshell, he spent the next hour and a half talking with both Kai and myself, listening, answering questions, doing functional tests, and sharing his knowledge and wisdom.  He was a wealth of knowledge that I cannot even begin to put into words!  I wish I could explain how comforting it is to talk with someone who understands the struggles Kai faces because he knows the depths of his disease, and the struggles and challenges it presents.  I must admit, I drove there wrestling with whether or not traveling 6+ hours to see a doctor was really worth it, considering every other doctor I take my little fighter to looks at him, writes notes, and never has any form of advice because they know less than I do about my precious Kai's disease.  To finally sit one on one with a specialist has spent his life researching and documenting other patients who struggle with various forms of Ataxia as well... it was almost as though it was comforting.  Rabbit trail here... but I've often said walking thru the past 3 years of a hellacious (is that even a word?!) divorce, it's incredibly comforting to just spend an hour in the presence of someone who's walked a parallel road to mine and fully understands the pain and agony of the betrayal and abuse I walked thru.  They just get it in a totally different way that you can't put into words, and I'm SO thankful for my precious friend God has put in my life for that role.  It's a place where I've often said God uses the pain they walked thru for His glory, to reach out and hold a broken girl like me walking thru the nightmare they've already lived.  So back to the doctor... it's like that with this specialist.  I didn't have to start from scratch with him.  He got it.  He watched and listened and answered my hundreds of questions.  He talked to Kai.  He asked Kai for his thoughts and opinions.  I LOVED that!  Kai felt valued as a patient rather than a science experiment that everyone usually examines and takes notes on, but then talks to me as if he's not even in the room.


The visit was an answer to prayers.  A God kiss.  Dr Crawford affirmed me like no other doctor has done. See, as a mom, there's days I ask a lot of questions to God.   "Why did You choose my son for this battle?  Why me as his mom?  And walking this alone without the support of a spouse like You intended it to be?  Why, God?  Why don't You just heal my boy?  How much longer do You think I can stay strong?  How am I supposed to work multiple jobs in order to make ends meet as a single mom of 4 precious monkeys who depend on me daily for their every need, yet I have this son who requires more of me than I even have for 1 child, let alone 4?  Do You really care God?  Am I really fit to be the mom of this little dude who depends on me daily for everything... doctors, therapies, school advocate, meals, specialists, cook, laundry, chauffeur, comforter, and his constant stability right now?  I'm broken and beat down God.  Don't you see that?  Don't you get the pain of betrayal and hurt that I'm already trying to process, let alone watching my child struggle with the simple tasks of every day living that I take for granted?  Do you hear me God?  Are you really listening?"

I've learned, and am still learning, that God often answers in unexpected ways.  He provides in miraculous ways for my needs and the daily needs of my babies.  He encourages me thru the precious time spent with friends loving enough to understand my exhaustion and inability to get out because of my responsibility to be with my monkeys every day and night, so they give up their evening to come sit with me and love me right in my own home.  He provides cards, letters, texts, phone calls, and e-mails from just the right family and/or friends at just the right time to encourage my weary heart.  He provides unexpected meals from friends who listen to His gentle whisper to her heart to "throw His girl a bone" (yep... that was her words! lol) and provide bags of groceries and a pizza treat for my kids on a night when this mama had just sat at the table with her kids that very morning and shed tears and prayed that God would provide dinner that night before their swim meet because this mama didn't have a single dollar to put it on the table.  (talk about a miracle that my children will never forget!  God provides!)  And in this doctor visit, God provided again.  Dr. Crawford looked at this weary and beat down mama, as my kids did somersaults off his exam table and blew up his gloves into balloons which they then proceeded to make fart noises with as they let out the air, and said a few sentences that meant more to me than anything else... "Heather, you as his mom know more than any doctor or specialist or therapist out there.  This is YOUR child and only you get to see him day in and day out.  YOU have a voice.  He's confined by his disease, but he's given freedom by you as his mom helping find modalities that can allow him to be "normal" in spite of his struggles and minimize his fatigue."  He then looked at Kai and said "You are confined by your disease, but not defined by it.  Your wheelchair will give you freedom!  You can use it and save your energy to run and play like you want to with your siblings and friends."  Then he got to the best part... "Kai, you do not have to wear your AFO or SMO braces, or your DMO body suit for the entire next year!  You don't have to take your meds for the next year!  We're going to see how you do, and if it progresses quickly, I reserve the right to change my mind on that, but for now, I want you to be free using your chair.  I want you to keep swimming, because it's the best thing for you.  And I want you to keep playing soccer and jumping on the trampoline and riding your bike and doing  your rock climbing.  Those are the best therapies you can do!"





I'm pretty sure Kai was fighting back the tears of joy, just like his mama... although he did a much better job of fighting them back, because they rolled down my cheeks. :)  No, he hasn't improved.  In fact his disease has progressed significantly.  I'm working to figure out a way to buy him the motorized chair (saying electric chair doesn't sound very good!  lol) that he wants... it looks just like a motorcycle, but is a pimped out wheelchair!  But something only an Ataxia specialist would recognize, is that a patient with Ataxia like Kai's (he has Ataxia with Oculomotor Apraxia Type 2 for those new to my blog... and although there's hardly any research or info available on his AOA2, it very closely resembles Friedreich's Ataxia, which there is loads of info on)... these patients need to allow their body to be unstable and unbalanced and they need to be able to figure out ways to accommodate, because otherwise they lose muscle tone in those very muscles used to stabilize them, causing their disease to progress even quicker.

So Kai is on cloud 9 right now!  No braces, no suit, no meds!  Only God knows for how long, but for the first time in 6 years now, I don't have to help him get ready in the morning before school.  You have no idea how "new" this feels to me!  Again... a little God kiss as this mama was feeling worn thin getting 4 kids up and ready and out the door to school 5 days a week every single week on my own!

So the journey continues... and the challenges continue... but so does HIS faithfulness.
And so do His kisses.


Valleys and Victories

Yikes!  I realized today that it's been nearly 4 years since I last wrote.  So intentions and actions sometimes just don't completel...